He suffers from a rare condition called Fibrodysplasia – which affects the growth and placement of his cells and tissue.
He said: “Right now I am afraid because I have a little daughter who kind of resembles me. I look at her head and I believe that she might look like me. Sometimes I worry because my children are still very young. I worry about what would happen to them if I died. I think about that a lot now.” see video below...
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